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Hospice care advice.

Hospice care advice.

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by: GoldenGirl Active Indicator LED Icon 15 OP 
~ 6 years ago   May 2, '17 10:13am  
My dad has come home from the hospital under hospice care. My mom is losing her mind and even with my sisters and I here it is just not enough. Please keep us in your prayers. Hoping with a heavy heart that he passes peacefully and that god gives my mom strength.
I am looking for advice if any of you have been through this. Currently we are using Altus hospice and are not impressed. Any hospice recommendations?? 4951
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buffaloglenn Active Indicator LED Icon 11
~ 6 years ago   May 2, '17 10:23am  
Hang in there - my grandmother was in hospice care several years ago now, but it was at a place rather than at home.  It was near the med center.  So, no advice for your situation specifically, but I hope the best for your family through this time. 4951
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BooBear Active Indicator LED Icon 16
~ 6 years ago   May 2, '17 10:26am  
If you aren't happy with the care worker they are sending, call the director.
My granddad was under hospice and we were very happy with them . its a rough thing to see and deal with. 4951
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Katzen Active Indicator LED Icon 9
~ 6 years ago   May 2, '17 10:35am  
We had my MIL living with us for about 2 years until she got to the point we needed to start hospice. We had Silverado hospice for about 7-8 months before she passed. Overall they were very good - no bad experiences, all their employees were quite caring.  4951
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lola Active Indicator LED Icon 17
~ 6 years ago   May 2, '17 10:39am  
@GoldengirlYou can call the person at the hospital that set up the hospice.They can give you a list and help coordinate the change if that's what you've decided.We dealt with a great hospice group. I'm trying to get the number.Does your mom understand what they will and will not provide?The hospice only keeps a person 'comfortable'.  They won't be there full time.If your dad is in pain or restless, tell them so that they can determine whether he needs more morphine.There are in-hospice facilities that you can have him transferred to. It may or may not be better for your family since you'll be going back and forth like you were when he was in the hopsital. But, you'll know that someone is checking on him and whoever stays with him regularly.Hope he passes peacefully. 4951
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sweetie Active Indicator LED Icon 11 Forum Moderator
~ 6 years ago   May 2, '17 10:42am  
I sent you a pm. God be with your family. 4951
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deltadawn Active Indicator LED Icon 8
~ 6 years ago   May 2, '17 11:10am  
My dad has come home from the hospital under hospice care.

@GoldenGirl:
 
 
I don't have any advice, but wanted to let you know that you and yours are in my thoughts and prayers. (((hugs))) 4951
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Fallon Active Indicator LED Icon 18
~ 6 years ago   May 2, '17 11:20am  
Removed By Request 4951
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sh56 Active Indicator LED Icon 13
~ 6 years ago   May 2, '17 11:21am  
We used Altus with my mom and my dad.  If you are not happy, talk to the director/area manager.  We were blessed to have wonderful caregivers who went above and beyond.  Prayers for you as you go through this...it is very difficult. 4951
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GoldenGirl Active Indicator LED Icon 15 OP 
~ 6 years ago   May 2, '17 2:46pm  
@GoldengirlYou can call the person at the hospital that set up the hospice.They can give you a list and help coordinate the change if that's what you've decided.We dealt with a great hospice group. I'm trying to get the number.Does your mom understand what they will and will not provide?The hospice only keeps a person 'comfortable'.  They won't be there full time.If your dad is in pain or restless, tell them so that they can determine whether he needs more morphine.There are in-hospice facilities that you can have him transferred to. It may or may not be better for your family since you'll be going back and forth like you were when he was in the hopsital. But, you'll know that someone is checking on him and whoever stays with him regularly.Hope he passes peacefully.
 
@lola:
It was my mom and dads decision for him to pass at home. So yes we are aware that there job is to make him comfortable. He is just so restless and the mail issue is the fit of the c pap that he has to wear at all times. I feel kind of like they just dumped him.
 
4951
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Retired_Engineer Active Indicator LED Icon 13
~ 6 years ago   May 2, '17 3:22pm  

- - - - - - - -
>> @GoldenGirlYou can call the person at the hospital that set up the hospice.They can give you a list and help coordinate the change if that's what you've decided.We dealt with a great hospice group. I'm trying to get the number.Does your mom understand what they will and will not provide?The hospice only keeps a person 'comfortable'.  They won't be there full time.If your dad is in pain or restless, tell them so that they can determine whether he needs more morphine.There are in-hospice facilities that you can have him transferred to. It may or may not be better for your family since you'll be going back and forth like you were when he was in the hopsital. But, you'll know that someone is checking on him and whoever stays with him regularly.Hope he passes peacefully.
 
@lola:
It was my mom and dads decision for him to pass at home. So yes we are aware that there job is to make him comfortable. He is just so restless and the mail issue is the fit of the c pap that he has to wear at all times. I feel kind of like they just dumped him.

@GoldenGirl:  Sometimes, you need to push a bit to get what you need or feel is best for your father.  My wife has Power of Attorney for her aunt and uncle in NE LA, who are both in hospitals.  A doctor put her aunt on a strong psychotropic drug to keep her quiet and more subdued.  When my wife found out, she called and chewed out the hospital director (small hospital) and demanded they stop that drug and contact her before ANY changes in medication. The head of nursing now calls my wife once a week for a status report.  We are fortunate that her aunt and uncle have good friends that visit them regularly and keep my wife informed if they have any concerns.There's no reason the supplier of the CPAP can't send someone to try different CPAP masks to find a better fit.  You will probably need to get his doctor to write the order.Both my father and older sister wanted to die at home.  The hospital released my father to go home and he passed away that night.  My sister was also sent home once her body started shutting down.  She died a week later.  She was under palliative care so she was in no pain that week.It is a tough time for family, but someone needs to stand up for your father if he can't.
 
 
4951
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sweetie Active Indicator LED Icon 11 Forum Moderator
~ 6 years ago   May 2, '17 3:36pm  
GoldenGirl, sorry I just got back on here. I know how you feel. Take a deep breath. Hospice will make your dad feel safe and comfortable. He will pass peacefully. Please don't feel alone. You can always call me or your mom can call me if you need any info. Your family should not feel alone. 4951
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QueenB Active Indicator LED Icon 16
~ 6 years ago   May 2, '17 4:12pm  
@GoldenGirl: Definitely ask for a different CPAP mask as there are several types. Surely one of them will give him the comfort he needs while he wears it. May God bless you and your sisters with peace of mind and comfort. It's not easy going thru this but I'm sure that your parents are so glad that you all are looking after them. You know for certain that we have you and your Dad and your family in our prayers. And we know that God answers prayers!   4951
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KooKooCaChoo Active Indicator LED Icon 4
~ 6 years ago   May 2, '17 4:34pm  
If the mask makes him agitated and uncomfortable, take it off . His O2 sat will drop, but at this point it's about his comfort. Agitation is also symptom of pain... he may need more morphine. It's not easy watching our loved ones die. May God give you all peace and strength.. hang in there 4951
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Zoey Active Indicator LED Icon 2
~ 6 years ago   May 2, '17 4:46pm  
My dad has come home from the hospital under hospice care. My mom is losing her mind and even with my sisters and I here it is just not enough. Please keep us in your prayers. Hoping with a heavy heart that he passes peacefully and that god gives my mom strength.
I am looking for advice if any of you have been through this. Currently we are using Altus hospice and are not impressed. Any hospice recommendations??
 
@GoldenGirl:
 
So very sorry for what you're going through. I've gone through that, too, not fun.
 
Did the hospice people supply your family w a bag full of meds for your dad, like potent
narcotics for pain, haldol, tranquilizers, etc?
 
I'm asking because I don't think that haldol should be a standard issue. That stuff is just crazy. My dad was given a bag full of meds and when I saw haldol, I told him not to take it.
Johnson & Johnson gets the medical profession to overload that poison anywhere they can with sometimes, very dire consequences, all for TONS of $. 4951
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coco1248 Active Indicator LED Icon 7
~ 6 years ago   May 2, '17 5:04pm  
My dad has come home from the hospital under hospice care. My mom is losing her mind and even with my sisters and I here it is just not enough. Please keep us in your prayers. Hoping with a heavy heart that he passes peacefully and that god gives my mom strength.
I am looking for advice if any of you have been through this. Currently we are using Altus hospice and are not impressed. Any hospice recommendations??

@GoldenGirl: I am so sorry I cannot help with ideas. My mom was in hospice 17 years ago for less than three months but I did not know the name as it was my hero sister who arranged it (I couldn't emotionally deal with it at the time). Honestly, I think hospice should also include emotional support for the family, and I believe you all should ask for it. My prayers are with you and your mom that our Almighty G_d grant you the strength, and courage to deal with this situation moreover peace as you move forward. You are doing all what a human can do within our limited human power. A warm hug to you all.  
 
 
4951
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