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Ulcerative Colitis - UPDATE

Ulcerative Colitis - UPDATE

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by: cowboysfan0314 Active Indicator LED Icon 1 OP 
~ 8 years ago   Dec 23, '15 4:05am  
Good morning all,
 
I tried to do the update from my original thread, but it appears to have been locked. Not sure why, there was nothing offensive in the thread that I was aware of, but if so, my apologies.
 
This past Friday, my son had to be admitted for a blood transfusion, his hemoglobin dropped dangerously low and wow, did they move fast. It still is not where they would like it to be, but they were able to release him.
 
Anyhow, my son had the scheduled colonoscopy on Monday and they were able to really get a better look at what is going on. We thought he was in complete remission, but it appears that he is not. The colitis now is not just contained to the 8 inches of the colon, but the entire colon.
 
We are now going to be trying either Humira or Rimicade to see which one he will respond to. We are almost at the tail end of tapering off the steroids and he will be stopping the chemo drug in order to start the new drug.
 
He is such a strong kiddo, but goodness, he is dealing with a lot for an 18 year old. I tell him that there is a reason all this is happening and just as trials and tribulations have made me a stronger person, this too will make him even stronger. Emoticon
 
Again, thank you all for the prayers and words of strength.
 
4951
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J2911 Active Indicator LED Icon 8
~ 8 years ago   Dec 23, '15 8:01am  
I think all threads get locked after a certain period of time. Hope your son feels better soon. I know it must be very hard for you as well. 4951
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Annie Active Indicator LED Icon 18
~ 8 years ago   Dec 23, '15 8:04am  
@cowboysfan0314:
 
Best wishes to your son and the whole family. 4951
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foxymama Active Indicator LED Icon 14
~ 8 years ago   Dec 23, '15 8:04am  
Colon issues suck big time.  I hope the treatment provides relief.   4951
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RogueHippEE Active Indicator LED Icon 8
~ 8 years ago   Dec 23, '15 8:59am  
So Sorry he was admitted, Humira is a great drug and has helped tons of people.  I took it years ago and it did help. 4951
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staylifted Active Indicator LED Icon 5
~ 8 years ago   Dec 23, '15 9:09am  
Prayers for your son . My little sister has UC and was diagnosed when she was in HS,she is now 38 and had to learn what caused her flare ups and what meds worked as it was all trial and error 20 years ago. It is a long hard road and I wish you luck with a speedy recovery . 4951
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Weathergirl5 Active Indicator LED Icon 8 Forum Moderator
~ 8 years ago   Dec 23, '15 9:30am  
Prayers for you and your son.  Hope they can get answers soon and the new drug works.   4951
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Weathergirl5 Active Indicator LED Icon 8 Forum Moderator
~ 8 years ago   Dec 23, '15 9:30am  
Prayers for you and your son.  Hope they can get answers soon and the new drug works.   4951
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Bearfin Active Indicator LED Icon 7
~ 8 years ago   Dec 23, '15 9:34am  
Awe poor kiddo! I hope the new medicines give him som relief. That is a lot for anyone to deal with but 18! Wow. God bless and continued prayers for him. 4951
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