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Sensory Processing Disorder

Sensory Processing Disorder

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by: Burnsway Active Indicator LED Icon 13 OP 
~ 9 years ago   Apr 9, '14 5:31pm  
Anybody know much on it or suspect a child you care for has it or has been diagnosed with it? You can answer here if you want but if you dont want to be public with it you know where the private messages are.....lol 4951
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Jpgurl Active Indicator LED Icon 18
~ 9 years ago   Apr 9, '14 7:00pm  
My ds. But back in the day they really didn't have a name or diagnosis for it. What do want to know? 4951
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Burnsway Active Indicator LED Icon 13 OP 
~ 9 years ago   Apr 9, '14 7:23pm  
Just info...researching it a bit. I know there is several different types and levels also. Did your DS do OT?Did it help? Did he out grow some of it? Was your family doctor good with choices you made, was he misdiagnosed at first?....that kind of stuff.....:-)Did they call it SPI at the time he was diagnosed?Twenty questions.....LOL 4951
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Okiedokie Active Indicator LED Icon 11
~ 9 years ago   Apr 9, '14 7:57pm  
Just info...researching it a bit. I know there is several different types and levels also. Did your DS do OT?
 
Did it help? Did he out grow some of it? Was your family doctor good with choices you made, was he misdiagnosed at first?....that kind of stuff.....:-)
 
Did they call it SPI at the time he was diagnosed?
 
Twenty questions.....LOL
 
@Burnsway: The child would take OT if diagnosed.  They tend to outgrow, or become accommodated to it.  A good PCP will request that your child be tested by a professional.  They shouldn't be diagnosed until tested.
4951
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Jpgurl Active Indicator LED Icon 18
~ 9 years ago   Apr 9, '14 9:31pm  
He had a bit of PT and OT as an infant but honestly it was but a drop in the ocean compared to everything else on our plate. By the time he was 5 he had seen every specialty at Children's Hospital in Cicinnati except Psychiatry ( he managed that at 11). I mean it was hard to differentiate between problems. For instance, was he only sleeping 1 hour out of 24 a sensory problem, prematurity, or Bipolar? Was his behavior issues reaction to overstimulation or learning disabilities or Bipolar or was he on the Autism spectrum?He wouldn't wear anything with a zipper, and no tags what so ever. Some of it he outgrew and some of it he still deals with. Jeans have to fit a certain way- he will only wear boxers ( at only point he would only wear briefs AND boxers together). He had to have routines and some of the routines were OCD- they had to progress in a certain manner or he would flip out. Lol yeah he was (is) a hot mess. There are so many grey areas where problems blend and over shadow each other. He's been dx'd ( in order of diagnosis) intrauterine growth retardation, sensory issues, ADHD, suspected Aspergers ( back then the spectrum wasn't as wide as today so the dr wouldn't officially dx'), PDD, opposition disorder, nonspecific learning disability, sight and hearing issues and finally Bipolar 1 with rapid cycling. Sometimes I felt like the docs really have no clue but then I felt like that as his parent too. So yeah he fit the Sensory Processing Disorder but he fit so many other things too. My favorite therapist back in Ohio put it the best- "It's like his wiring ( brain). got scrambled majorly before he was born as did some of his physical systems." That's about the best description.
 
4951
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Burnsway Active Indicator LED Icon 13 OP 
~ 9 years ago   Apr 9, '14 9:57pm  
Thanks Jp  After I read that I remember you bringing this up before. It seems that the medical field is taking it more serious than they use to. I had never even heard of SPD till a year or so ago and am just now learning the ins and outs of it.They say now that 1 in 10 kids have some form but its found in 80 percent of kids that have another disorder too such as ADHD or aspergers....etc so doesn't surprise me that if your son had another issue and the SPD was just part of it. 4951
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Burnsway Active Indicator LED Icon 13 OP 
~ 9 years ago   Apr 9, '14 10:12pm  
BTW Im not trying to be nosey......LOLI feel my daughter suffers the 10% that have no other disorder and that she was NOT born with it but possible a head injury(possible when the dental thing went on) caused some of it. It all started after that.I want to learn as much as I can before taking her in because I know many docs instantly will grab onto adhd or anxiety and head straight for the pill bottle.She has the mild signs...needs sunglasses when out, gets a bit clumsy, sensitive to noise and yes NO TAGS....LOL Pulling eyebrow hairs out, claustrophobic....etc But she functions at a very high advanced level academically(except math) and although a bit withdrawn when she "first" meets people she does socialize on a healthy level and fits in once comfy so Im not too worried I just would like to help her not be so uncomfortable in her life.Somebody I hold high respect for feels she may be 2E (thats gifted but with a mild disorder)I cant afford a thousand doctors to all give opinions so before I start dropping thousands of bucks I want to make sure we are on the right track. Which I feel we are. So been doing  alot of research on it and books sites...etc...just havent heard many peoples actual experience with it. 4951
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fcabanski Active Indicator LED Icon 16
~ 9 years ago   Apr 10, '14 12:56am  
www.webmd.com/parent ing/features/the-tru th-about-sensory-pro cessing-disordeThis is another condition, like ADHD, that is real but over diagnosed.  A child who taps a pencil, for example, has a symptom of SPD.  But that child may not "have" SPD or need any treatment.When I was a kid the doctor wanted to put me on medication for ADHD.  My parents refused.  The doctor wanted to treat me for SPD.  My parents refused.  Neither "condition" caused me or anyone else any problems.  I liked to finish work in class quickly and then walk around.  The grade school principal found the solution was to let me walk around as long as I didn't disturb any of the other children.  Sometimes I'd browse books from the book shelf.  Sometimes I'd dust some things.  Sometimes I'd look out the window.  My work was complete, my grades were good, and I didn't disturb others.Some kids are unusual.  Some kids dislike certain smells or tastes or sounds.  To this day I can't stand the smell of raw onions and meat.  I can't stand the taste.  Sometimes I need to feel pressure on my fingers or arms, so I grab things to twist my arms and fingers for the pressure.  When I was a kid I liked a solid black color.  Sometimes I colored a piece of paper with the black crayon until the paper was solid black.  One teacher had a conference with my mom about it.  I told them I liked the way the black crayon looked on the paper.I grew out of some of the behaviors.  I learned to control others.  I can sit still for hours.  By H.S. I no longer needed to wander.  But I still like to walk around and fidget when it's OK to do it.  I whistle when I can - I like the sound.  I dislike loud noises.  When I hear a hum or rattle I find out what's making it.  I try to stop it. Treatments for conditions like ADHD or SPD often are just forcing all kids to adhere to an average, accepted set of behaviors.  You have to determine if the behaviors/reactions are interfering with life.  4951
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Jpgurl Active Indicator LED Icon 18
~ 9 years ago   Apr 10, '14 6:48am  
Burnsway- you have to do what you think is best for your family. As Fbanski said there is a lot of over diagnosing going on, a heard a lot of that from people who thought my son was just high spirited and slow ( intellectually). But I knew in my heart of hearts something was wrong since I was pregnant. A diagnosis is just a label not to define the person but to help that person learn to live. I think we got so many diagnosis because mental illnesses in infants and children were not accepted protocol at the time. I have friends with children who are exactly like my son and their diagnosis is Autism. So many grey areas when it comes to the brain and it's chemicals. I will say that had I not pursued so much help for him I may be sitting here trying to defend myself as to why I didn't get help because of some act he committed. I get weary of the "arm chair quarterbacking" that goes on by people who have no clue of what it's like to have a child with special needs. Yes there is a lot of mis diagnosing - I saw it- but in my experience that has always worked itself out. The parents just felt the diagnosis or treatment wasn't right for them. What I saw mostly, was a child who really struggled and needed help and the parents were in total denial. Those kids aren't doing well as adults.
You just need to do what you feel is right. I understand the $$- we've been through a retirement fund with our son- and not just for the mental aspect- he had/has a ton of physical problems- some of them resolved as he grew but others required surgeries, treatments and medications. Good luck 4951
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topcat Active Indicator LED Icon 12
~ 9 years ago   Apr 10, '14 9:47am  
@Jpgurl We should have a meet up sometime with other parents on KDC with these situations. No one but us really understand the mental stamina it takes to get through the days, months and years trying to do what's best for our children. Not to mention dealing with the school :/ We can bounce idea off of each other, share experience, vent and laugh. 4951
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BooBear Active Indicator LED Icon 16
~ 9 years ago   Apr 10, '14 9:50am  
I haven't had these kinds of issues but I've had to deal with seizure disorder...can I come too? 4951
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Burnsway Active Indicator LED Icon 13 OP 
~ 9 years ago   Apr 10, '14 9:52am  
If we take her in and have her tested there will be NO DRUGS...this is very mild, most would not notice but she will also be tested for giftiness. See, many times the SPD will hide the gifts and the gifts may hide some of the SPD. School will miss this and the kids are left not meeting their individual potential. I want her on her own to be all she can be but a few of these things are hindering that just a little. My daughters are more like quirks than disabilities and many signs we missed untill I had her home 24/7 for homeschooling. I also firmly believe this is left over damage from the whole dental thing. Cant ever prove that but I know she didnt have any of these signs before that. She also said she banged her head over and over when strapped in the papoose. I always knew deep down, once we got her through the stress, shock and anxiety of what happened that we would probably see some more permanent damage years later.I do NOT thinks its serious enough to panic or rush anything at all. I may or may not take her in but I would like to know as much as possible so I can make the right decisions. Hence why I came public with questions. I also think its never bad to educate oneself...HA! 4951
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topcat Active Indicator LED Icon 12
~ 9 years ago   Apr 10, '14 9:55am  
@BooBear Yes. That counts.
 
@Jpgurl @Burnsway What do you think? This Saturday maybe? 4951
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Burnsway Active Indicator LED Icon 13 OP 
~ 9 years ago   Apr 10, '14 10:00am  
@Jpgurl We should have a meet up sometime with other parents on KDC with these situations. No one but us really understand the mental stamina it takes to get through the days, months and years trying to do what's best for our children. Not to mention dealing with the school :/ We can bounce idea off of each other, share experience, vent and laugh.
 
@topcat: I thought long and hard on a play group where they can just outright play at the play ground no rules but you guys have grown babies.....LOL I know many parents with aspergers and ADHD kids that feel out of place and judged. Be nice to have a group where no quirks gotta be apologized for.....LOLPerfect example. They say its great therapy for SPD children to walk UP a slide or SPIN  in a swing to teach body space awareness. How many times do we yell at kids for that as inappropriate playground play...roflmaoAgain Dawns issues are so very mild many dont notice untill its a more stressful situation and she melts down a little faster. Just as a mother I do think a few of the issues hold her back from her full potential. It also will cause her to withdraw in larger groups. But I hate large groups too so I can understand that....HA!
4951
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topcat Active Indicator LED Icon 12
~ 9 years ago   Apr 10, '14 10:10am  

- - - - - - - -
>> @Jpgurl We should have a meet up sometime with other parents on KDC with these situations. No one but us really understand the mental stamina it takes to get through the days, months and years trying to do what's best for our children. Not to mention dealing with the school :/ We can bounce idea off of each other, share experience, vent and laugh.
 
@topcat: I thought long and hard on a play group where they can just outright play at the play ground no rules but you guys have grown babies.....LOL I know many parents with aspergers and ADHD kids that feel out of place and judged. Be nice to have a group where no quirks gotta be apologized for.....LOLPerfect example. They say its great therapy for SPD children to walk UP a slide or SPIN  in a swing to teach body space awareness. How many times do we yell at kids for that as inappropriate playground play...roflmaoAgain Dawns issues are so very mild many dont notice untill its a more stressful situation and she melts down a little faster. Just as a mother I do think a few of the issues hold her back from her full potential. It also will cause her to withdraw in larger groups. But I hate large groups too so I can understand that....HA!
 
@Burnsway: I 'd go to offer advice and experience. I want to help people with young ones not to have to learn the hard way like I did.
 
4951
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Burnsway Active Indicator LED Icon 13 OP 
~ 9 years ago   Apr 10, '14 10:22am  
I worked with special ed for years as an aid through HISD with kingwood college kids and inhome programs for younger kids. Autism and ADHD were two of the most I worked with and that Im thankful for because I can tell that is NOT the issue with my child because I had experience with it. Somebody mentioned SPD and 2E kids to me a while back so started reading deeper into it and it just answered ALOT of questions I have had for 2 years. More than anything else has. With my daughter she needs hard and hard play and more play that most 9 yr olds no longer do or need. I think her senses missed out on that very important stage because she was dealing with healing for 2 years. Sometimes Her academics except math and her creativity are up there with 12 yr olds but yet sometimes her maturity and play in groups are down with 6 yr olds.....makes it very hard at times to get her in a place she feels comfy in.Now that she is a little more comfy and trusting a few things are surfacing. Poor kid probably just needs more time. Maybe a bow and arrow with a certain dentist face on the target might help her. She did say she wants to take archery.....LOL 4951
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